My Chronically Ill Network

My Chronically Ill Network

I have made so many amazing friends on this chronic illness journey that God has entrusted me with. Would I have chosen this path? Absolutely not, but I trust the plans and purposes of my heavenly Father. We all need a network of people who understand our struggles and just plain get us.

I am involved in a few groups and found some great online sources, I’ll put some links here for you still that you can check them out. My hope is that you’ll find one or more that really resonate with you.

Resources:

Coping to Cash Flow

Fibromyalgia News Today

Fibromyalgia Night Owls 

Counting My Spoons

The Spoon Theory

The Chronic Illness Writers Group

But You Don’t Look Sick

Rest Ministries

Sick and Sick of it

My Restored Health

Seeking the Gifts of Fibromyalgia

Fed Up With Fatigue

 

Follow these people on Instagram:

@hurricaneinheels

@countingmyspoons

@lane_pietrylo

@kimfrederickson

@chronicblogs

@chronicallyboxed

@crazyspoonielife

My Facebook groups:

In Spite Of My Illness

The Konmari Method for the Chronically Ill

 

 

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Fibromyalgia and Joint Issues

Fibromyalgia and Joint Issues

I recently observed people with Fibromyalgia talking about frozen shoulder and other shoulder and joint issues, and I wondered if there could be a connection. I asked the question in a few FM Facebook page groups I’m in, if anyone had joint issues. I got over 60 affirmative answers just today!

I’ve had frozen shoulder on my right side for well over a year and now my left side is starting to be symptomatic. It’s incredibly painful and makes simple activities like reaching for something, or getting dressed seem like an Olympic event… albeit it a very painful one. Do you struggle with this?

Another issue many appear to struggle with is TMJ. The temporomandibular joint connects your jaw with your skull. TMJ can cause difficulty with chewing, headaches, jaw and facial pain. I recently had my dentist make me a mouth guard to wear at night. It keeps me from grinding my teeth and helps to calm my jaw pain.

Bursitis of the shoulder, elbow, and hip are also common issues for those of us with FM. The bursa is a small fluid-filled sac lined by sinovial membrane. It’s purpose is to provide a cushion between the muscles, tendons, and the bones around a joint. Sometimes getting a shot of cortisone can bring temporary relief of several months or more.

What kind of joint issues do you struggle with? How do you find relief?