I have made so many amazing friends on this chronic illness journey that God has entrusted me with. Would I have chosen this path? Absolutely not, but I trust the plans and purposes of my heavenly Father. We all need a network of people who understand our struggles and just plain get us.
I am involved in a few groups and found some great online sources, I’ll put some links here for you still that you can check them out. My hope is that you’ll find one or more that really resonate with you.
Coping to Cash Flow
Fibromyalgia News Today
Fibromyalgia Night Owls
Counting My Spoons
The Spoon Theory
The Chronic Illness Writers Group
But You Don’t Look Sick
Sick and Sick of it
My Restored Health
Seeking the Gifts of Fibromyalgia
Fed Up With Fatigue
Follow these people on Instagram:
My Facebook groups:
In Spite Of My Illness
The Konmari Method for the Chronically Ill
I recently observed people with Fibromyalgia talking about frozen shoulder and other shoulder and joint issues, and I wondered if there could be a connection. I asked the question in a few FM Facebook page groups I’m in, if anyone had joint issues. I got over 60 affirmative answers just today!
I’ve had frozen shoulder on my right side for well over a year and now my left side is starting to be symptomatic. It’s incredibly painful and makes simple activities like reaching for something, or getting dressed seem like an Olympic event… albeit it a very painful one. Do you struggle with this?
Another issue many appear to struggle with is TMJ. The temporomandibular joint connects your jaw with your skull. TMJ can cause difficulty with chewing, headaches, jaw and facial pain. I recently had my dentist make me a mouth guard to wear at night. It keeps me from grinding my teeth and helps to calm my jaw pain.
Bursitis of the shoulder, elbow, and hip are also common issues for those of us with FM. The bursa is a small fluid-filled sac lined by sinovial membrane. It’s purpose is to provide a cushion between the muscles, tendons, and the bones around a joint. Sometimes getting a shot of cortisone can bring temporary relief of several months or more.
What kind of joint issues do you struggle with? How do you find relief?