I personally have had bouts of vertigo, loss of balance and dizziness throughout my journey with fibromyalgia. It can be especially challenging for me when I have appointments. For example,when I go to the dentist I have them lower and raise the chair slowly and not lower it flat. Even still, I have to hold on to the counter for a minute once I get up. When I go to the hairdresser I wash my hair at home first, then she just wets it as necessary while she trims it. Laying back to get my hair shampooed will definitely trigger vertigo for me.

Vertigo is the sensation of the room spinning or tilting and is often accompanied by nausea. Only one episode of vertigo was actually bad enough to make me vomit. It can be caused by an inner ear imbalance. I typically experience it when laying on one side but not the other. I never seem to go more than a month or so before it’s back again. I’ve had the Epley Maneuver done and that relief lasted about 6 months. It was performed in an ENT office (ear, nose, throat). I have what is referred to as BPPV (benign paroxysmal positional vertigo). I can’t watch spinning things or fast moving objects without feeling nauseas and closing my eyes.

I have experienced lightheadedness accompanied by nausea, so unpleasant. That happens mostly when my IBS flares. Also, if I stand too quickly I will feel momentarily lightheaded. I have never fainted, but have felt close to that on numerous occasions. No fun!

Dizziness can also cause us to feel off balance. I’ve fallen a few times, so now I’m good at stopping and holding onto something solid, or sitting until it passes. I wonder if we are more sensitive to these symptoms because of fibromyalgia, do you experience this?

Unsteadiness is a type of dizziness that makes you feel not-balanced. When I feel this kind of dizziness, I feel like I could just topple over and fall down. It’s interesting that it appears to most often affect older people rather than the young. I can attest to that in my own life.

You could think of it like this: when you get off a roller coaster that has a lot of upside down loops, your brain is attempting to catch up to your body being away from the ride. It causes unsteadiness and potentially nausea. So unpleasant!

Some common causes of dizziness and/or vertigo:

After you have been standing for a lengthy period of time

When you go from sitting to standing

Climbing up the stairs

When you are in a warm environment

After you have been exercising

After you have eaten a heavy meal

After you have experienced a lot of emotional stress

Some medications you take

Feel free to share your experiences in the comments.

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