The cold, the rain, the humidity, snow, and basically any change in the weather will affect my pain. Let’s break it down a bit. Since I live in the Northeast, I experience a lot of different weather. The heat and humidity of Summer, the cooler, damper weather of Fall, the incredible cold of Winter, and the amazing season called Spring.

Since it’s summer currently, I’ll start there. In order to escape the hot and humid weather, I try to stay in an air conditioned space. For me, the majority of that time is in my bedroom. If the air is too cold my legs and hips experience increased pain. So, I’m constantly adjusting the temperature to minimize the pain. If it’s too warm, I will tend to feel weaker and nauseas. It’s a constant battle.

When it rains, or even if it’s just cloudy and the air is more moist, it increases my pain all over. At times, this forces me to take pain meds, but I work hard to avoid them when possible. I love the sound and smell of rain, but my body rebels. That’s when the heating pads come out.

I absolutely love the first snow of the season! It’s beautiful and so sparkly white. My pain level soars in the cold and dampness of winter. It can become a deterrent and distraction from the things I want/need to do. Warm blankets and heating pads become my constant companions. It can be so frustrating not enjoying the beauty of winter due to the distraction of pain.

I really enjoy watching a good thunder and lightening storm…it’s magical and dangerous at the same time. The pain it causes reminds me of having the flu and every area of your body hurts. If you’ve ever experienced all over pain due to fever or illness, multiply that pain by about 5 and you’ll come close to the pain I experience.

Pain robs me of the simple pleasure of just enjoying all the various seasons.

My hope is that this helps friends and caregivers have a greater understanding, and my fellow spoonies traveling with me will know I’m privileged to be a voice for you.

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